tag:blogger.com,1999:blog-4744427773401707938.post459945978936932144..comments2023-10-29T02:28:12.148-07:00Comments on Stonebird: Briefing notes on the CDC Empirical Case Definition for CFSUnknownnoreply@blogger.comBlogger3125tag:blogger.com,1999:blog-4744427773401707938.post-3368799292278444252010-10-29T12:59:22.414-07:002010-10-29T12:59:22.414-07:00Thanks.
There's a petition against the criteri...Thanks.<br />There's a petition against the criteria at: http://www.ipetitions.com/petition/empirical_defn_and_cfs_research/TKno2https://www.blogger.com/profile/12390568027330222100noreply@blogger.comtag:blogger.com,1999:blog-4744427773401707938.post-49120831721712266652010-09-26T11:36:36.086-07:002010-09-26T11:36:36.086-07:00Thanks for all you do to raise awareness of ME/CFS...Thanks for all you do to raise awareness of ME/CFS and with this new clinic. i heard about it recently and was delighted to hear the news.<br /><br />I was lucky after 4 years of chronic ill health and being diagnosed with ME/CFS a chance course of antibiotics improved my symptoms significantly and led my GP to suspect Lyme Disease ( there had already been several cases present in the early stages of tick bite, and rashes)<br /><br />I was lucky my GP treated me on long term antibiotics following ILADS Guidelines. Eventually i found a lyme specialist in Wales who gave me a clinical diagnosis and I am now nearly 100%.<br /><br />Chat Line Eurolyme (about 2300 members mostly from UK) did a survey and 75% had previously been diagnosed with ME./CFS.<br /><br />Where I live in Guildford Surrey I have got to know about 24 others with Lyme Disease the latest was diagnosed with Parkinson's last Christmas but now it is found to be lyme and his symptoms are already improving since being on antibiotics.<br /><br />Sadly despite plenty od research which supports ILADS and opposes IDSA view the HPA here in the UK follow the IDSA guidelines and the ME charities are also turning a blind eye.<br /><br />Many of the realy top ME/CFS experts around the world do recognise that for some ME/CFS patients lyme Disease can be involved. The best possibnle place here in the UK would be the Breakspear clinic in Hemel Hempstead lets hope this new centre in Norwich will one day also take Lyme seriously.<br /><br />Already some lyme patients have been tested positive for XMRV.<br /><br />Perhaps you might consider doing an awareness post on your blog to encourage patients to consider Lyme as a differential diagnosis.Joannehttps://www.blogger.com/profile/12905137222286141548noreply@blogger.comtag:blogger.com,1999:blog-4744427773401707938.post-35422164974913715642010-09-22T10:08:56.145-07:002010-09-22T10:08:56.145-07:00Thanks.Thanks.Andrew1noreply@blogger.com