Showing posts from March, 2010

Ten things you should know about Webstart , the Website Designer Course

Ten things you should know about Webstart , the Website Designer Course :
Greg Crowhurst

1. Check it out :

What makes a good web design course ? How do you judge ? Check out the accreditation . is there a money back approval ? Is there a personal tutor service ? Does the course offer a thorough grounding in HTML and CSS ?

I have just finished and passed my final assignment , Assignment 10 , see- "".  Webstart has given me the tools I need to bring together so  many aspects of caring full-time for my wife who has very severe ME and use them as a powerful campaigning tool.

 Not only am I intensely proud of my new skills,   I now qualify for a NCFE Level 3 award in Web Design  from UK Open Learning : a Diploma  in Web Design.

As someone who has an MA, a Nursing qualification and Post graduate qualifications in Education and Training and Development, I had no idea of how rigorous this course would be. Perhaps I even thought it a bit below me, an easy ride. Wrong…

Comes a time

You would think after all those YouTube videos I would have so much to say. Except I don't. Nothing touches the grief, the loss, the pain. Words, I have discovered, do not come easy these days.

Emotions, though, are screaming for attention.

Comes a time, when words run out.

What Malcolm Hooper has said about NICE

What Malcolm Hooper has said about NICE

On a cold, bleak day, bleak with pain, with tedium - see Linda's poem yeterday, I came across Sir Michael Rawling's reply to Malcolm Hooper on CoCure. In this post I have tried to put what Rawling's said in context of the upcoming Guideline Review as well as NICE's intimidatory tactics, as demonstrated at the Judicial Review.

Letter to Sir Michael Rawlings (Chairman of NICE) 19 Feb 2010
Despite the vast amount of biomedical literature (some 5000 papers) going back to 1934 and the classification of ME as a neurological illness by the WHO (ICD-10 G93.3) since 1969, the official UK attitudes as demonstrated by the MRC, DWP, Department of Health, and to some extent your own organisation NICE:a. ignore all this an ideological commitment to a psychosomatic/behavioural model of the illness which is no longer tenablec. recommend only cognitive restructuring techniques (CBT and GET) that are “not remotely curative” and have…

I can sit

I can sit in a room
with severe ME
and even though
there are things to do
and endless possibilities
for the physically well
Yet still
I cannot access them
Even if they are right before me
How can I convey
the sheer
tedium of hours spent
constantly in pain
body throbbing endlessly
each throb
marking the seconds
as they flow away
physical movement
utterly beyond me
mental thought
all gone
energy dissipated
vanished completely
along with
and all my creative potential.

Linda Crowhurst
9th March 2010

16 Good Reasons to be very suspicious of Action for ME.

16 Good Reasons to be very suspicious of Action for ME.

Greg Crowhurst
5th March 2010

From the literature, here are 16 good reasons to be very suspicious of Action for ME (AfME).


The case against the National Institute for Health and Clinical Excellence (NICE) is generating considerable interest among the 250,000 people in the UK who have M.E., as some patients hope the legal proceedings will lead to the withdrawal of the guideline.

However, Action for M.E., the country's biggest M.E. charity, supports the guideline. "

National Charity Supports NICE: Judicial Review 11-12/02/09, UK


Malcolm Hooper

It is noteworthy that Action for ME, a charity that was set up by ME sufferer Sue Findley as a self help group for people with ME, has been so influential in supporting and working on a trial that assumes membership of a self help group to be a predictor of poor outcome of teeatment ( Trial identifier, section 2.3)and with a trial wh…

Deathmaking : Check out the Facts

Deathmaking :
Check out the facts (updated)

Greg & Linda Crowhurst
4th March 2010

A UK debate is raging right now that has profound
implications for the whole ME Community. To what
extent should we accept the psychosocial model ,
because the biomedical model is not being
advocated for, developed or created by mainstream

This issue can only be tackled, we suggest, by taking
a step back and looking at the wider picture; the
concept of death-making is a particularly useful
framework from which to begin.

Death-making is concerned with society's potential to
bring death not life to those it does not value, This
includes the unwanted unborn, unwanted children,
people with a disability, the poor, prisoners, street
people, native populations, the elderly, the
contagious, the chronically ill, the terminally ill; any
group of people that is perceived as a threat or that
has been demonized.

Any practice, action or thought that considers a
person to be less than human, less than val…

101 Good Reasons

101 Good Reasons :
Why it is wrong to provide CBT and GET to ME Patients.

Greg Crowhurst 2nd March 2010
(With special thanks to Clara Valverde)

Permission to Repost

From the literature , here are 101 good reasons why services are
wrong to provide Cognitive Behaviour Therapy (CBT) and Graded
Exercise Therapy (GET) for ME patients :


Malcolm Hooper

CBT is based on the idea that somatoform disorders are maintained by
abnormal or unhelpful illness beliefs which lead to abnormal or
unhelpful behaviour. The first requirement for a somatoform diagnosis
is that there be no physical cause for the symptoms. This is not the
case in ME/CFS”


Dr William Weir

“Two forms of treatment…are CBT and GET CBT is a psychological
treatment. Its application in what is certainly an organic disorder
is basically irrational....

Its application is counter-intuitive, particularly when one of the
most debilitating and well rec…