Stonebird

  INTERNATIONAL ME AWARENESS DAY MAY 12 2024 With thanks to the great Tom Hennessy, much missed, who was the founder of this day. What level of sainthood would you need To not be angry at the medical neglect, The tirade of psychiatric nonsense that continues to spout forth, And cover up the truth of a real, physical disease, That leaves people clinging to the edge of life In indescribable agony, with profound yet ignored, Incredibly serious system dysfunction? Linda Crowhurst

  SEVERE/VERY SEVERE ME : FUNDAMENTAL CONSIDERATIONS Awareness of the right approach, at the right moment, in the right way, with sensitivity and empathy is absolutely critical. Your presence is of the utmost importance: 1. all you say and do 2.how you are feeling in yourself 3. your energy level 4. what you are conveying through your posture 5. your values and attitudes These are all key to interacting well with anyone, but especially so, with someone who is in high physical pain and may have a range of tormenting, unremitting and very severe symptoms. It is important you know that the slightest wrong movement, noise or action, on your part, may lead to even worsening levels of symptom experience and physical distress. It is a very skilled approach. Every nuance, every breath, every movement counts and can bring relief or negatively impact the person. We recommend the MOMENT Approach, for more information please see : https://carersfight.blogspot.com/.../understanding-mom