DLA Reforms : Severe ME Form Letter. (Please Repost)

25% Severe ME Group and Stonebird
(Please  repost widely)

Introduction :

In December, the Government launched a consultation on replacing Disability Living Allowance (DLA) with a Personal Independence Payment (PIP) which will have a new method for assessment, including 'independent medical assessment' and more reviews of claimants.

Disability Living Allowance is essential for  people with Severe ME  as it provides tax-free financial support for care or mobility needs  and is not related to an ability to work.

The closing date for the Consultation is Friday 18th February . It is crucial that the voice of the Severely Affected be heard by the DWP and the Government. We have created a form letter and if you are in agreement please feel free to send this or your own response  to the DWP and a copy to your MP  , before Friday  18th February. 

You can send this letter  by post and or by email as follows :

DLA Reform Team
1st Floor
Caxton House
Tothill Street

Email: consultation.dlareform@dwp.gsi.gov.uk

Please also  send a copy to your MP (you can email them by entering your postcode into www.writetothem.com).

The full consultation can be found here :


Dear DLA Reform Team,


I have severe Myalgic Encephalomyelitis (ME), a neurological disease that affects multiple systems of the body, and I am severely disabled. There is no known cure for my disease. Severe ME brings profound cognitive problems as well as functional disabilities, severe ongoing malaise that is amplified on even minor exertion, and many other complex symptoms that can make life a torment.

Disability Living Allowance (DLA) is an essential payment that people with severe ME rely upon to help meet their care and mobility needs.  There are no compelling grounds to abolish it. The suggestion that the DWP can justifiably slash the welfare budget under the banner of replacing DLA with a system of  ‘Personal Independence Payments’ (PIP) that is ‘simpler’ and ‘fairer’ is fundamentally flawed and disingenuous. It would appear that many people who face additional costs of living as a result of having a long term disabling disorder will no longer qualify for help when DLA is replaced with PIP. The predictable impact of the PIP system on people with prolonged ill health and disabilities will be enormously detrimental and unacceptable.

There are also potential adverse knock on consequences. If a person loses their benefits under PIP, then their carer may loose Carer's Allowance, then making it impossible to pay basic bills and to carry on caring.

The administrative costs of replacing DLA with the new system will be hugely expensive and a poor use of taxpayer’s money.

The Ministerial foreword to the consultation paper states: “We are steadfast in our support for the principles of DLA, as a non-means-tested cash benefit contributing to the cash costs incurred by disabled people.”  If this support is to progress beyond lip service then the government require to radically rethink their legislative plans for a new system.

I ask you not to abandon the Disability Living Allowance and replace it with Personal Independence Payment. The government’s plans amount to the introduction of an inferior, unreasonable and unfair system. The introduction of PIP may act to reduce the budget deficit but unlike DLA it will not meet the needs of people who are chronically sick or disabled. 

Yours sincerely,

Popular posts from this blog

A letter to Sir Andrew Dillon , Chief Executive, NICE

NICE : a Reply Regarding my letter to Sir Andrew Dillon

Why ME must be removed from the JCPMH Report : Guidance for Commissioners of Services for People with Medically Unexplained Symptoms