Pragmatism : Why the ME Leadership is so wrong
There's an argument that goes something like this :
“In the real world almost all ME/CFS research is carried out on people with Fukuda CFS ...the only way to sort out the ME/CFS mess is to identify clinical and pathological sub-groups under the ME/CFS umbrella. ”
We could identify it as the pragmatic argument.
Except, what has " pragmatism" ever done for us ?
In the USA, decades of “pragmatism” has arguably led to the 1% growing richer and the remaining 99% fighting for their scraps. As Fishoutofwater comments :
It was “pragmatists” who drew up the CDC criteria.
I wonder what those founding fathers from long ago, : Samual Adams, John Adams ,Thomas Jefferson and Benjamin Franklin would make of America today ?
No one would call them pragmatists - radicals !
It is America that is responsible for perpetuating the neoliberal orthodoxy of deregulated financial markets and unfettered corporate power around the globe, that has brought us all to the brink . Few have been greater victims of the rampant corporate wickedness , than people with ME; the giant insurance companies making damn sure, that no one with ME gets treated.
“CFS” is the greatest medical scandal in history.
“Give me leaders that stand for something. “ cries Fishoutofwater. Yes I shout in
reply, although no one hears me.
If ONLY our leaders in the ME Community stood for something !!! There is not one leader in any of the big ME Organizations that I know of speaking up for ME – apart from Simon Lawrence of the 25% Group !!!
The big ME organizations have compromised the truth for decades by not standing up to the psychiatrists. Those who have not compromised, like Simon, have simply been sidelined .
And now those same “leaders” , shame on them, are advising “pragmatism” …....
The radical bravery and leadership shown by Scotland inspires me to keep waving my tattered little flag in the air : “No compromise !!” it has read, all these long years.
You see, as Henry Rollins says : When you start to doubt yourself the real world will eat you alive.