You cannot even define what ME is !

We have had an horrific week.

It fills me with rage, daily witnessing my wife's never-ending screamingly awful agony, to know that STILL, after so many years, nobody can definitely say what ME is and who has got it.

It is absolutely horrific that is no universally accepted clinical definition of the disease, one that takes into account the full symptom experience across the ME spectrum, including paralysis.

What hope is there of helping the most severely affected, all the time you cannot even define what ME is! 

We are in desperate need of a concise definition, one that separates ME from generalised fatigue conditions, misinterpretation and mistreatment.


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