Withering away

I am withering away

by small daily degrees.

I am ill, yet

I am getting more ill.

I am reduced,

diminished to sitting in a chair

unable to move or think

or lying in bed unable to sit upright,

my muscles unsupportive

and unable to comply with my intention.

I am declining

while the government and the NHS speak about

service and choice.

There is no choice here.

There is no help available on the NHS.

Instead there is ignorance, 

apathy, 

avoidance,

deliberate denial,

inability to to engage with the truth

and take appropriate action

red tape

and fobbing off,

often negating or patronising responses

ignorant practitioners

inappropriate services

and inadequate provision.

Yet this is a serious neurological disease.

I am disappearing

physically and mentally

whilst my loved one, my husband, my carer, my advocate, my all

fights on year after year , decade after decade,

against the machinations of despair and denial:

the psychiatric psychosocial lobby

that destroys all hope of biomedical truth and integrity.

When is enough enough?

When will the Truth spearhead change?

When will the lies and nonsense

being disseminated about ME,

finally be recognised

and the great psychosocial scam

of the 21^st century

be exposed ?

ME is a truly devastating physical disease.

But when will I have the security of knowing it is being treated as such?

When will I feel safe from persecution, ignorance, denial and neglect?

When will the NHS pay for the proper biomedical tests and treatments my serious disease requires, as standard care?

And when will I not be marginalised and hidden away,

misrepresented and misunderstood,

out of sight and out of mind

in splendid isolation,

coping with deteriorating health

without the proper  support of the National Health Service

Time is surely come for a change?

Linda Crowhurst