When you can't

6am. My wife gasping,  she is so much agony;  she cannot take any more, she cries.

The pain, paralysis, numbness, noise, light, touch sensitivity,profound  multi-system dysfunction  has lasted for over 18 years. Change, such as it is, moves at a glacial pace. Professionals take all the time in the world, months,  to get back to us. All I could do was dig  deep  ,  to offer what crumb of comfort I could could.

Later , on my bike, for that is how I cope myself, I crest a hill and see white waves breaking . Here's the thing, I tell  myself. We have always taught that the three most important decisions anyone with ME has to make, at anyone time are :

When you CAN
When you CAN'T
When you MIGHT 

..But what  happens when all that's left  is 


What  then ?

Popular posts from this blog

A letter to Sir Andrew Dillon , Chief Executive, NICE

NICE : a Reply Regarding my letter to Sir Andrew Dillon

Why ME must be removed from the JCPMH Report : Guidance for Commissioners of Services for People with Medically Unexplained Symptoms