1 Respect my reality, don't undermine it.
2 Listen accurately to me
3 Don't try and fit me into a theory that negates my experience
4 Never forget there is a post-exertional autonomic reaction in genuine ME and always take it in to account.
5 Look for the underlying physical dysfunctions in ME and name them accurately.
6 Write accurate validating helpful medical reports
7 Do not use the term CFS to mean ME or use any other variation that incorporates CFS in it.
8 Work in genuine partnership with me if you want to help me.
9 Never dismiss my physical reality just because you cannot understand it or misinterpret it through ignorance.
10 Offer genuine support, based on equality of person-hood; anything else is game playing and leads to disconnection.
Posted by Greg Crowhurst