What can be said of energy? There is profoundly little available with Very Severe ME.
Energy is so precious but so elusive.
A thought can be as hard if not harder to make than a movement.
People can drain your energy or uplift you without realising.
Every single moment is a moment where there is not enough energy.
Hard to imagine if you have it and take it for granted.
Terrible when you feel it draining from you literally, hurting you as it leaves.
In these circumstances any energy to function at all seems to be a grace.
It is so important then to not get caught up in the negative draining energy of others and to remain always in hope that there will be enough energy to live.