With ME there is so much confusion, misinformation, misrepresentation around, that to survive you need to be grounded in truth to survive.
This takes time and effort, especially because very few people really know the truth of ME.
You have to learn who to trust and when to trust, how to determine who is coming from the truth, who will will not harm you, who it is safe to see.
The wrong person can do so much harm.
The wrong treatment can be devastating and dangerous.
The wrong interpretation can be utterly damaging.
It is not only important that you are grounded in truth, it is important that the person you see is grounded in the same truth .
A matrix of truth is so important to keep a person with ME safe. The importance of a grounding in truth cannot be overemphasised.