Greg and Linda Crowhurst (August 8 th 2013). Synopsis Paralysis is a symptom that is rarely highlighted in the literature for ME, yet is found amongst the most severely ill ME population and even some of those not so severely affected. My wife has experienced it for almost 2 decades, without adequate exploration, alongside exposure to denial and dismissal, ignorance and neglect as well as harmful treatment. We wanted to find out if there was anyone else with a similar experience to my wife's or if she was a rare and very severe case. We wanted to highlight the seriousness of this symptom and ask why it is being ignored and down played not only by the medical profession, with its inappropriate focus on fatigue and the psychosocial response, but also by the main charities, none of whom, flag it up as a main symptom. This qualitative research study indicates that there are significant others experiencing apparently similar paralysis and that my wife is not un...
Hi, just wondering if you can buy your book on amazon.
ReplyDeleteHi Amanda, I am afraid not yet, but soon. Meantime the paperback is available from Lulu, details on Stonebird at www.stonebird.co.uk/book/spirit.html
ReplyDeleteThanks for your interest.
Greg
Thanks for getting back to me fast. Just down loaded your e book and left a comment. Will buy book soon as its nice to have the 'real' thing. Great book by the way!
ReplyDeleteDear Amanda, bless you !! That was a wonderful , affirming comment that you left - it has lifted us up and made our day. Thank you so much.
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