By Diane I'm not sure where to start but this is my story so far. My name is Diane and I'm a carer for my adult daughter, Lili, who is completely bedbound with very severe myalgic enceplalomyelitis. For Lili, M.E. didn't come slowly. It very rudely crashed into her life and very quickly stole her health, taking bigger and bigger chunks of it as she deteriorated. It all began when she experienced a gastric-flu virus of a sort she had never experienced before because this time she never regained her health. A couple days later, she woke up with agonising head pain 'like her brain was on fire', with severe neck pain – she also couldn't move her neck, and her whole body was paralysed. She's not sure how long she stayed like this as she was in and out of consciousness but she truly felt that she was going to die because her body was undergoing an extreme crisis. To cut a long story short, it took a year to get a diagnosis durin...
To Tom,
ReplyDeleteWhere ever you are now….
I could write that you impressed with your relentless will to fight and the bravado with which you were talking “truth to power”, but to me you were foremost a soul friend like no other. You were smart, wise, strong, funny and full of life. Above all, I could talk to you about anything. It was not always easy and we shared some hard times. But by god we also shared some good times, fantastic memories, the love for music and above all a GOOD DREAM.
Words cannot describe the deep sorrow I feel that you have left without a warning.
So Tom, like always when I miss you, I send a song into cyberspace and hope you will hear it.
LOVE
DE ONE
P.S. I must believe we will meet again.
http://www.youtube.com/watch?v=YiOYsnET6Iw