Feature : Medical Research : Dangers of research into chronic fatigue syndrome Nigel Hawkes BMJ 2011 ; 342 : doi: 10.1136/bmj.d3780 (Published 22 June 2011 ) [ Extract ] [ Full text ] [ PDF ] Who are the real victims ? Linda Crowhurst , Very Severe ME patient Norfolk Because a few people are behaving inappropriately, it does not mean that the real physical needs of people with neurological ME are not a genuine issue. It does not mean there are not valid issues about PACE that are right to be raised. It does not make the findings of the PACE Trial any more valid for people with ME - and it certainly does not negate the ongoing biomedical neglect of patients, which is directly a result of the confusion that the psychiatric lobby has created , regarding the proper treatment of ME, a WHO-classified , serious neurological disease. Nor does it make right the implication that ME is a mental health condition requiring therapy as treatment. Peter White , the lead investigator o
To Tom,
ReplyDeleteWhere ever you are now….
I could write that you impressed with your relentless will to fight and the bravado with which you were talking “truth to power”, but to me you were foremost a soul friend like no other. You were smart, wise, strong, funny and full of life. Above all, I could talk to you about anything. It was not always easy and we shared some hard times. But by god we also shared some good times, fantastic memories, the love for music and above all a GOOD DREAM.
Words cannot describe the deep sorrow I feel that you have left without a warning.
So Tom, like always when I miss you, I send a song into cyberspace and hope you will hear it.
LOVE
DE ONE
P.S. I must believe we will meet again.
http://www.youtube.com/watch?v=YiOYsnET6Iw