This is what is meant by "Noise Sensitivity"

This is the impact of noise in Very Severe ME; this is what is meant by "Noise Sensitivity". 

This is how my wife's whole day has been. 

Very, very few know, even fewer understand.

Comments

  1. Sensory signals are amplified and modified by several mechanisms. Something is terribly wrong in sensory processing in ME patients. We need to find the “broken” mechanism. It could be an autoimmune attack on ..??? We need more research!!!
    http://followmeindenmark.blogspot.dk/2013/09/transducer-and-amplifier-in-mecfsmcspain.html Sincerely Helle Nielsen

    ReplyDelete
  2. There is knowledge from other diseases that could help us understand ME, and give us ideas for new research: "Hyperacusis in patients with complex regional pain syndrome related dystonia" http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2095603/ and this quote "The sensory abnormalities may include a sudden increase in sensitivity to light, noises, smells, tastes or textures of foods or items of clothing.." from "DOPAMINE (post-streptococcal) related autoimmune encephalitis" http://pandasnetwork.org/wp-content/uploads/2013/07/Dopamine-related_autoimmune_encephalitis.pdf Helle Nielsen

    ReplyDelete
  3. Sorry. forgot this one: Vestibular Hyperacusis. Are you sensitive to certain sounds? http://vestibular.org/vestibular-hyperacusis Regards Helle

    ReplyDelete
  4. Has she ever been tested for Lyme Disease? A lot of ME patients are finding they have Borellia infections.

    ReplyDelete

Post a Comment

Popular posts from this blog

55 REASONS why NICE must recommend a home visiting, biomedical service, for people with Severe Myalgic Encephalomyelitis

36 Issues worth pointing out IF A CLINICIAN REFUSES TO “BELIEVE IN ME” OR WRONGLY CONSIDERS IT TO BE A PSYCHIATRIC CONDITION

A REVIEW OF THE 2018 EDITION OF THE ME ASSOCIATION CLINICAL AND RESEARCH GUIDE FOR ME/CFS