This afternoon

 When the pain is too much, when the person is screaming because they cannot bear it, you as the carer may have little to offer, apart from your presence, for the medical neglect is almost total in Severe ME. 

This is a place of  overwhelming poverty, inexpressible heartache, profound anger; it tears you apart.

Comments

Popular posts from this blog

When I am 64 and other false positives : The PACE Trial.

THE STONEBIRD DEFINITION OF SEVERE ME

Paralysis, a qualitative study of people with Severe Myalgic Encephalomyelitis