The Nothingness of Nowhere

The nothingness of nowhere. The ancient author of the Cloud of Unknowing describes how you can be blinded by the light in such a place.

You can also be bored, bored beyond any comprehension of the word by the terrible emptiness.

The nothingness of Very Severe ME is almost total. There is nowhere the person can go, there is nothing they can do to escape the ravaging hypersensitivity that has destroyed their life, their gut-tearing suffering, there is no comfort for them anywhere, no relief, no distraction. They have to be in it.

It is inevitable that the carer will experience a hint of this place, as they try to sustain the person.

The great danger, in any moment, is despair. Great courage and bravery are required to hold you both, carry you through.


Popular posts from this blog

When I am 64 and other false positives : The PACE Trial.


Paralysis, a qualitative study of people with Severe Myalgic Encephalomyelitis