Linda's response to the BMJ
Feature : Medical Research : Dangers of research into chronic fatigue syndrome Nigel Hawkes BMJ 2011 ; 342 : doi: 10.1136/bmj.d3780 (Published 22 June 2011 ) [ Extract ] [ Full text ] [ PDF ] Who are the real victims ? Linda Crowhurst , Very Severe ME patient Norfolk Because a few people are behaving inappropriately, it does not mean that the real physical needs of people with neurological ME are not a genuine issue. It does not mean there are not valid issues about PACE that are right to be raised. It does not make the findings of the PACE Trial any more valid for people with ME - and it certainly does not negate the ongoing biomedical neglect of patients, which is directly a result of the confusion that the psychiatric lobby has created , regarding the proper treatment of ME, a WHO-classified , serious neurological disease. Nor does it make right the implication that ME is a mental health condition requiring therapy as treatment. Peter White , the lead investigator o
the music is very difficult to listen to if have severe m.e. - but the harsh discordant monotony of it perfectly encapsulates the dark painful never ending hollow your brain and body inhabit when you have m.e. at it's worst. - when senses are on serrated knife-edge, when every part of you is consumed in pain, when you can't even think or make sense, or bear it, but you have to. it's very touching Greg, that you are able to express in music that which words can never fully describe. gentle love and care to you both.
ReplyDeleteThank you, thank you, so much xxx
DeleteBeautiful and Moving....
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