SEVERE ME UNDERSTANDING AND REMEMBRANCE DAY Aug 8th We were asked by ME Group Australia to write an article on finding Hope in this place of endless, severe suffering: You Are Precious And Your Presence Matters, a Reflection on Hope. Greg and Linda Crowhurst When you are diagnosed with Severe/Very Severe ME, hope is an ephemeral, delicate thing. If you hope to be immediately better, or return to your previous life, those hopes will, most likely, be dashed, if the diagnosis is correct. When I was asked to write this article for ME Group Australia, I asked Linda, my wife, what hope means to her. She commented : “Hope for me cannot be about anything specific, unless that specific thing is actually achievable, or potentially achievable or possibly achievable at some point in time, even if it feels unlikely . For me hope comes in small things, not big things. Hope of a better moment, hope to not be irritated, hope to not be distressed, hope not to be tormented in every single mome...
You are doing a great job, Greg & Linda. This society has indeed lost its moral compass but I find comfort in the fact that there is protest and it's growing. This cannot and will not go on forever but of course we should have seen drastic change for the better years ago. Sending love & hoping you'll find the strength to keep up the good work.
ReplyDeleteThank you so much Claudia, that is very kind of you- and a great encouragement. Love, and hope to you xx
ReplyDelete