The harm done through ignorance.

People diagnosed with Severe ME have to be so careful. It is very hard to find someone who comprehends the risks and dangers of engaging with them, especially because the illness is so hidden, invisible, misunderstood not adequately investigated. 

 Once you reach a certain level of the illness there comes a point beyond which people cannot risk investigations. The danger to your health and life is so immense.

  People need help badly, but it needs to be given in the right way. 

 The harm done through ignorance is indescribable.

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Stonebird
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(This is taken from :
“Severe ME : Notes for Carers” : http://stonebird.co.uk/Notes/index.html)
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A REVIEW OF THE 2018 EDITION OF THE ME ASSOCIATION CLINICAL AND RESEARCH GUIDE FOR ME/CFS

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Stonebird :
A REVIEW OF THE 2018 EDITION OF THE ME ASSOCIATION CLINICAL AND RESEARCH
GUIDE FOR ME/CFS
Dr Charles Shepherd and Dr Abhijit Chaudhuri

The MEA recently kindly sent me their "Purple Book" for review. It is so good that my well-thumbed copy now occupies a privileged, permanent place beside my computer. I have only had it two days and cannot live without it!

If you have ME then this is a profoundly useful overview of the disease.

If you want to research into or know more about ME, then you will want this treasure trove of information with its stunning coverage of Terminology, Epidemiology and co-morbidity, Medical Research, Management including pharmacological and non-pharmacological treatments, Prognosis, just to name a few of the areas .

The famous Purple Book is a gripping read!
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