This is Severe Myalgic Encephalomyelitis Understanding and Remembrance Day.
This is a day to really focus on the reality of the most severely affected who are in constant agony, tormented by complex hypersensitivities, completely isolated from the normal things of the world.
It is a day to remember, with love and respect, the horrendous suffering and loss of life of so many dear friends and fellow sufferers.
It is to hold all in love and kindness and be inspired to make change happen.
How long do we have to endure such torment, without hope of proper recognition, understanding, clinical support and kindness?
How long will we be misinterpreted, misrepresented, mistreated or given no treatment for our serious severe symptoms?
How many more people have to suffer ignorance and death?