It is so dangerous !

People with Severe ME need this :
The correct information that ME is a neurological disease with multisystem dysfunction, not just some fatigue condition that you can recover from with Cognitive Behaviour, Graded Exercise Therapy or a Think - Yourself- Well course.
Support provided by those who are acutely aware of the physiological issues of ME and the extreme danger of harm and deterioration that can result from any interaction, however well intentioned.
Well experienced, medically aware consultants with a genuine overview of neurological ME and its biomedical implications who will properly investigate the underlying physiology.
This will not happen all the time psychiatric misrepresentation is promoted.
It is so dangerous to think you can engage with people who deny or who do not understand your illness.

Comments

Popular posts from this blog

25% Group and Stonebird Response to BACME article on care provision for severe ME.

Hoping for a post-PACE world

Severe ME : THREE VERY BASIC CONCEPTS THAT CARERS NEED TO GRASP