Please Mr Corbyn
As someone who has fought for over twenty years for a medical service for his wife, as a finalist in the British Journal of Nursing, Nurse of the Year Award 2015, as a member of the Labour Party, I posted a detailed letter, outlining the shameful politics of ME, to Jeremy Corbyn, yesterday urging him, with all the power and passion I could muster to ask this question at Prime Minister's Questions :
"Please can you explain why there is no national or local medical neurological service in the UK for patients with Myalgic Encephalomyelitis (ME), classified since 1969 as a neurological disease by the World Health Organisation (G93.10.3) Tens of thousands of seriously ill patients in the UK currently receive no ongoing clinical support, no adequate investigation, not even a safe diagnosis. Surely ME must be the only neurological, multi-system disease that is not treated with the seriousness and respect that it deserves? Instead patients are abandoned, often for decades on end, without any investigation, treatment or cure, many, as a result, have died an agonising death. People with ME need a biomedical pathway. What will you do to ensure they get it?"