Can we safely write about ME anymore ?

It seems to us that anyone and their dog is able to talk about "My ME" these days. The situation is a nonsense, a shambles. Meantime people with Severe ME continue to receive nothing, not even their symptoms, like paralysis, formally acknowledged.

It doesn't look like the situation is going to change anytime soon.

The agenda, clinican rather then patient-driven, as always, remains firmly focused on fatigue; which is not even a defining feature of ME.

Can any of us even safely write about "ME" anymore, or claim to have it,  given the domination of CFS and the dilution of the name to mean anything you want it to ?

I am not sure we can.


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