Quality of Life Score in ME

In my experience, the Quality of Life score, for someone with Very Severe ME is pretty close to or
even below zero; their never-ending, paralysing, tortuous, utterly debiliating agony is way off anyone's scale.

There are very few who know that Severe ME is NOT the same as having a severe episode of ME.

REF : The Health-Related Quality of Life for Patients with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) Michael Falk Hvidberg,1,* Louise Schouborg Brinth,#2 Anne V. Olesen,#1 Karin D. Petersen,#1 andLars Ehlers PLoS One. 2015; 10(7): e0132421.Published online 2015 Jul 6. doi: 10.1371/journal.pone.0132421

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