Always use the correct term to refer to "ME".

Always use the correct term to refer to "ME", if you do not, then you are actively perpetuating a seriously dangerous state of confusion, denial, oppression, mistreatment and medical neglect leading to death.

Myalgic Encephalomyeltis/ Post Viral fatigue Syndrome (ME/PVFS) is formally classified as a neurological disorder in the International Classification of Diseases (ICD10:G 93.3; WHO 1992).

“CFS”, according to the WHO is only acknowledged as a colloquial, not an absolute term to represent ME. The ICD separately classifies fatigue syndromes as a behavioural (psychiatric) disorder (ICD 10:F 48).

What the PACE Trial refers to “CFS/ME” is a condition of “medically unexplained” fatigue that is perpetuated by inappropriate illness beliefs, pervasive inactivity, current membership of a self-help group and being in receipt of disability benefits (PACE Trial Identifier, section 3.9).

“ME/CFS” is an umbrella term, subject to many different interpretations, incorporating a wide range of meaning and poorly identified conditions.


Popular posts from this blog

The psychiatric abuse of Children with ME

Risk Assessment for interactions with people with Severe and Very Severe ME/CFS -an essential and important inclusion in the new NICE Guidelines