SEVERE ME UNDERSTANDING AND REMEMBRANCE DAY Aug 8th We were asked by ME Group Australia to write an article on finding Hope in this place of endless, severe suffering: You Are Precious And Your Presence Matters, a Reflection on Hope. Greg and Linda Crowhurst When you are diagnosed with Severe/Very Severe ME, hope is an ephemeral, delicate thing. If you hope to be immediately better, or return to your previous life, those hopes will, most likely, be dashed, if the diagnosis is correct. When I was asked to write this article for ME Group Australia, I asked Linda, my wife, what hope means to her. She commented : “Hope for me cannot be about anything specific, unless that specific thing is actually achievable, or potentially achievable or possibly achievable at some point in time, even if it feels unlikely . For me hope comes in small things, not big things. Hope of a better moment, hope to not be irritated, hope to not be distressed, hope not to be tormented in every single mome...
How awful an experience,but hard as it is,remember this tells you more about that man than you or Linda.Karma will prevail as the Universe must balance itself out...what one gives out,you ultimately get back....I feel your pain,in every sense.The builder will leave and as ever your amazing strength will see you through.Think of the kindnesses which good people have shown you. Xx
ReplyDeleteDear Maureen, you have shown us that people do care, are incredibly kind. Your recent reaching out, your love,your ongoing support and concern, means the world to me xxxxx
DeleteDear Maureen, you have shown us that people do care, are incredibly kind. Your recent reaching out, your love,your ongoing support and concern, means the world to me xxxxx
DeleteSo sorry to hear you were treated this way Greg. I only know you from our online interactions, but feel the total injustice of the comments on your behalf. Thinking of both you and Linda, and wishing for better times. xx
ReplyDeleteIn my experience over 30 years of being debilitated by M.E. the greatest pain is not the physical but the beating the heart takes. It makes me acutely aware of the value of human kindness and the hell we inhabit in it's absence.
ReplyDeleteAbsolutely -"the beating the heart takes", how beautifully expressed. Thank you so much Willo.
DeleteWillo so profound what you said.That wisdom comes from the searing heat of the suffering of this vile illness for decades.....just yesterday,I experienced that "beating the heart takes"but then the kindness which gets us through another day...I wish you,Linda&Greg and all ME sufferers more kindness ......especially from the medical profession in the form of proper research,care then a cure.
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