Feature : Medical Research : Dangers of research into chronic fatigue syndrome Nigel Hawkes BMJ 2011 ; 342 : doi: 10.1136/bmj.d3780 (Published 22 June 2011 ) [ Extract ] [ Full text ] [ PDF ] Who are the real victims ? Linda Crowhurst , Very Severe ME patient Norfolk Because a few people are behaving inappropriately, it does not mean that the real physical needs of people with neurological ME are not a genuine issue. It does not mean there are not valid issues about PACE that are right to be raised. It does not make the findings of the PACE Trial any more valid for people with ME - and it certainly does not negate the ongoing biomedical neglect of patients, which is directly a result of the confusion that the psychiatric lobby has created , regarding the proper treatment of ME, a WHO-classified , serious neurological disease. Nor does it make right the implication that ME is a mental health condition requiring therapy as treatment. Peter White , the lead investigator o
How awful an experience,but hard as it is,remember this tells you more about that man than you or Linda.Karma will prevail as the Universe must balance itself out...what one gives out,you ultimately get back....I feel your pain,in every sense.The builder will leave and as ever your amazing strength will see you through.Think of the kindnesses which good people have shown you. Xx
ReplyDeleteDear Maureen, you have shown us that people do care, are incredibly kind. Your recent reaching out, your love,your ongoing support and concern, means the world to me xxxxx
DeleteDear Maureen, you have shown us that people do care, are incredibly kind. Your recent reaching out, your love,your ongoing support and concern, means the world to me xxxxx
DeleteIn my experience over 30 years of being debilitated by M.E. the greatest pain is not the physical but the beating the heart takes. It makes me acutely aware of the value of human kindness and the hell we inhabit in it's absence.
ReplyDeleteAbsolutely -"the beating the heart takes", how beautifully expressed. Thank you so much Willo.
DeleteWillo so profound what you said.That wisdom comes from the searing heat of the suffering of this vile illness for decades.....just yesterday,I experienced that "beating the heart takes"but then the kindness which gets us through another day...I wish you,Linda&Greg and all ME sufferers more kindness ......especially from the medical profession in the form of proper research,care then a cure.
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