Dominated by Illness

Who I want to be and could be if I did not have a very severe, neglected and underinvestigated illness that dominates my whole life:

Kind, thoughtful, loving, interested, excited, concerned, inclusive, happy, laughing, beautiful, pretty, generous, tender, listening, empathic, engaged, funny, passionate, sharing, creative, together.

Who I am :

  • Paralysed
  • Muscles screaming
  • Trembling
  • Shaking
  • Irritated
  • Unable to articulate
  • Unable to share
  • Unable to connect
  • Unable to explain
  • Unable to listen, convey, debate, have dialogue, too numb , too hurting, frustrated, stultified, immobilised, shut down, crushed by sound, tortured by vibration, hurt by physical contact
  • Blanked out by other people's lives
  • Isolated
  • Upset
  • Unintentionally unkind
  • Shouting
  • Unable
  • Sorry.


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