NICE does not list ME as a Functional Somatic Disorder
That is simply wrong.
I wrote to NICE on March 13 to clarify whether the JCPMH Report is correct in stating that ME is a somatoform disorder. They confirmed (March 15) :
"Thank you for contacting the National Institute for Health and Care Excellence (NICE) regarding our guideline chronic fatigue syndrome/myalgic encephalomyelitis (or encephalopathy): diagnosis and management (CG53)
We have not listed ME as a functional somatic disorder in the above guideline and unfortunately I am unable to comment on the report issued by the Joint Commissioning Panel for Mental Health."
It is a profoundly serious issue that the JCPMH, while claiming to act in accordance with NICE, has misinformed Commissioners that ME, a WHO Classified Neurological Disease is a "Functional Somatic Disorder."
The JCPMH needs to notify Commissioners immediately that its guidance is wrong.
It also needs to withdraw Myalgic Encephalomyelitis from its wholly inappropriate inclusion in :"Guidance for commissioners of services for people with medically unexplained symptoms."
The implications for patients, of this wrong classification, are vast and unquantifiable.
None of the big ME Charities, however, seem to be doing anything about getting the JCPMH Report retracted.