is profoundly dangerous !!
The person with Severe ME is not simply fatigued but is experiencing multiple severe symptoms, serious system dysfunction and complex, mostly ignored, pathology.
Nothing, for them, is controllable, predictably repeatable or necessarily safe to repeat.
Every single thing has the terrifying potential to push the person to unimaginably worse symptom experience and health deterioration.
For any intervention there should be a thourough Risk Assessment, based the very real dangers of deterioration.
The fundamental assumption that there is no underlying pathology, however, undermines any possible risk assessment, even if performed.
The lack of a Risk Assessment is a glaring omission in the new BACME document purporting to be about Severe ME yet not describing G93.3 Myalgic Encephalomyelitis at all.
It needs to be challenged by every charity and patient group.


Popular posts from this blog

Linda's response to the BMJ

The psychiatric abuse of Children with ME

We Remember: A poem for 8th August, Severe ME Understanding and Remembrance Day