With Severe ME you are on your own ; finding some way to survive the never-ending onslaught of multiple physical symptoms, moment by outlandish moment, is beyond impossible.
There is virtually no one to turn to for medical help and advice, all that is formally on offer is a psychosocial pathway that denies there is any pathology.
You might be lucky and have an aware GP - but they are unlikely to have access to expert help, so the GP is very limited in how they can help.
You might be able to pay privately, but that is fraught with risk.
This is the stark situation people with Severe ME are in.


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