New article out
SEVERE ME UNDERSTANDING AND REMEMBRANCE DAY Aug 8th We were asked by ME Group Australia to write an article on finding Hope in this place of endless, severe suffering: You Are Precious And Your Presence Matters, a Reflection on Hope. Greg and Linda Crowhurst When you are diagnosed with Severe/Very Severe ME, hope is an ephemeral, delicate thing. If you hope to be immediately better, or return to your previous life, those hopes will, most likely, be dashed, if the diagnosis is correct. When I was asked to write this article for ME Group Australia, I asked Linda, my wife, what hope means to her. She commented : “Hope for me cannot be about anything specific, unless that specific thing is actually achievable, or potentially achievable or possibly achievable at some point in time, even if it feels unlikely . For me hope comes in small things, not big things. Hope of a better moment, hope to not be irritated, hope to not be distressed, hope not to be tormented in every single mome...

Hello. I am sorry to have lost contact with Greg on facebook. This is to thank you both for all you have done to help carers and pw severe & very severe ME. My daughter, 26, is not post-viral but has steadily deteriorated from severe to very severe. She now needs full time care. I, 60, cannot do this alone or forever. Your publications have helped me begin the difficult process of recruiting staff. Thank you, with tears of gratitude, love and solidarity. Sarah
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