Stonebird

From : Unstoppable Spirit : Contemplations & Prayers for those who suffer.

Norman Lamb, UK Minister of State for Care and Suport,  has written to me. His letter contains the following clarification  : " The use of the composite term "CFS/ME" is not intended to imply unanimity of aetiology of conditions covered by the term, or indeed to suggest that all conditions which fall within the scope of this term are equal in terms of severity of impact. The use of an umbrella term is also not intended to imply that fatigue syndrome and myalgic encephalomyelitis are equivalent " He also stresses that "The Department of Health classes CFS/ME as a chronic neurological condition and we are clear that CFS/ME is a chronic illness and health and social care professionals should manage it as such."

Even when the noise has temporarily lowered The echo vibrates, reverberates , resounds physically around my body, tearing at my ravaged guts, my muscles tremble then shake violently out loud Diminishing me Demolishing me Damaging me Dementing me Still Even when the paralysis looses its grip for just a second Still it clings to me pulling every cell towards total incapacity time and again without relent Halting me Hurting me Hindering me Harming me Still Even when I have managed to move my finger or my toe or my eyelid or my mouth The inability still lingers, lurking in every muscle Reducing me Redefining me Ravaging me Rasping at me Still Even when the headache finally lowers, The head pain and body pain is ever present, no cell unaffected Shouting at me Screaming at me Scorching at me Sundering me Still Even when the moment by moment external assault diminishes slightly ,the  constant, internal, pounding bodily assault remains, harming me with its ...

"Hello! My name's Amy, I'm 30 years old and I live in Winchester (Hampshire). I have suffered from this horrid illness M.E. for over a decade and am mostly housebound and often bed bound. Every year I try and do something in my own little way to raise funds for charity, but when you have severe M.E. you are quite limited in what you can do!  In the past I've done a sponsored silence and sponsored screen free weekend, as well as giving up Birthday and Christmas money to raise awareness and money for M.E. However, each time that I do, I am very aware that it is only those in the M.E. community or their immediate friends and family who donate. Very rarely does the news travel to the general public. I realised it was going to take something a bit bigger to do this and given that my body won’t allow me to bungee jump or parachute jump... sadly, I have made the bold or should I say bald decision to shave my hair off to raise money for charity!! Very drastic I know, ...

This is just to announce my new book, written with much love for all who suffer and struggle - God bless us all.

Just got  back from my cycle ride today - the final proof  of Unstoppable Spirit has arrived !  It is almost ready.

Every moment is a  moment of extreme limitation Every moment is a moment of constant and severe physical torment Every moment is a moment of total constant continuous pain everywhere Every moment is a moment of unpredictable reaction Every moment is a moment of feeling severely ill. Every moment is a moment of numb limbs. Every moment is a moment that the environment is hostile Every moment  is a moment where noise is harmful, damaging and dangerous. Every moment light pierces and impacts painfully. Every moment  is a moment that the world is inaccessible.  Every moment the environment is hostile and unpredictable. Every moment is a movement away or towards paralysis. Every moment is a moment of inability. Every moment is a moment of brain fogged unreality. Every moment is a moment of difficulty interpreting incoming information. Every moment is a moment of physical difficulty. Every moment is a moment of physical distress. Every moment is a momen...