All the hooey
Lying in bed, late last night, Linda sobbing in too much pain, in far too many parts of her body to cope with, I reflected upon that MEA Survey, with my blood boiling. This is serious suffering going on here, and there is only me and my arms and my not knowing what to say after 17 years of relentless and deteriorating hell. And now the MEA have put out a document, entitled "Managing my ME" - a title that immediately made my toes cringe, a document which eases itself down, with a contented sigh, so smoothly, so comfortably into the NICE / Psychiatric paradigm, give or take one or two tweaks, don't you know. You have to wonder, does anyone else inhabit the world of ME that I do ? Inhabitants of ME-land don't mention the "M" word at all, they are far too busy on their lonely quest, turning over rocks in the baking, blinding heat, trying to unearth some, any kind , of a test or a treatment; anything, that might help. God knows. They are far