They use our name but they do not treat our disease.
The use of the nonsense term "ME/CFS", tragically is epidemic. What exactly does it mean ? To us "ME/CFS" means " ME/not-ME "...... If you use the term ME/CFS you are all over the place, because you couldn't possibly have a clue who or what you mean. This is because “ME/CFS” is an umbrella term, subject to many different interpretations, incorporating a wide range of meaning and poorly identified conditions. Myalgic Encephalomyeltis,on the other hand, is a complex multisystemic metabolic-inflammatory disorder, involving profound dysregulation of the central nervous system , immune system dysfunction, cardiovascular abnormalities, autonomic nervous system dysfunction, formally classified as a neurological disorder, in the International Classification of Diseases (ICD10:G 93.3; WHO 1992). Very few patients in the UK, however, receive any physical investigation or treatment, especially the most severely affected. This is because o