EXTRA CONCERNS FOR PEOPLE DIAGNOSED WITH SEVERE ME, IN THE THREAT OF A NEW LIFE-THREATENING VIRUS.
Not enough is known, medically, about those people diagnosed with Severe/Very Severe ME, to know how any treatment or vaccine might affect the person. There is not even any agreed definition of ME, there is no universal safe treatment pathway, there is not enough good care guidance, to help doctors and nurses know how to deal with a person with ME, let alone if they then contract a dangerous virus, like Covid 19 on top of it. Anyone admitted to hospital will be reliant upon the medical staff understanding their physical and cognitive issues, their specific hypersensitivities, their complex communication difficulties and care needs. Yet, given how much misinformation has been disseminated about ME having no underlying medical pathology, about being a mental health condition, their serious, physical, underlying disease may or may not be understood, recognised or even accepted. This could make the experience of having to go to hospital even more fraught with difficulty. Witho