Speak Your Truth There is a huge amount of misinformation surrounding Myalgic Encephalomyelitis; I emphasized , in my presentation at the AONM / Midlands Fibromyalgia Group Irish International Conference on Oct 9th, how important it is to stand up for the truth of ME, as a devastating, neurological disease . For the last seventeen years I have cared fill time for my wife, who has Very Severe ME. I have learned a lot about how to cope, how to care for someone that ill and how to fight. It is very difficult, there are not many doctors or consultants with the experience and knowledge to know how to treat people with ME. The fact is, if you are to achieve anything for the person you will have to fight every step of the way. We have shown how it is possible to get an biomedical service , that the person with Severe ME does not have to left , with nothing being done for them, for decades on end, as is so often the case. It takes enormous courage , as a carer, not to comp