Dashed hopes and inappropriate services.
Stonebird What I want for Severe ME, yesterday, today and tomorrow... Linda Crowhurst I wrote this list of needs about eight years ago. What is devastating about it is that not one of these items has been fulfilled and enteroviral ME seems to have almost completely disappeared from recognition . Surely it is time we had accountability and responsibility for the serious medical neglect of some of the most severely ill and isolated people in the country. When will the charities achieve any of these goals by seeking and speaking the truth required to get change? 1 Universal respect that ME is a real, physical disease, not a syndrome or a fatigue state, by honouring it's proper name - Myalgic Encephalomyelitis. How many clinicians, professionals, charities, groups, individuals actually do this? 2 Appropriate full criteria that succinctly and clearly identify the disease. How many different criteria and poor criteria are being used to supposedly i