Scandal !! How people with Severe ME are simply ignored.
I have not posted anything in Stonebird for ages - that is because I am too busy trying, somehow to cope, to survive, Linda is so ill. It is fair to say, I think, that right now Linda and I are being pushed way beyond the limits of human endurance. Can you imagine that ? If you do not have direct experience of Severe ME, no you probably can't I have just received this heartbreaking, desperate letter from a fellow sufferer - who has kindly allowed me to publish it, names removed, to highlight the plight of people with Severe ME, the scandal that the most ill are given NOTHING !!! Far too ill to accept help, far too ill to access the likes of Facebook, as this mother says - what do you do ? How do you survive the daily torture and torment that is this awful illness ? Going through hell here, sadly, I have stumbled upon the following equation - the amount of help, the amount of understanding, the amount of friendship you get in is in verse propo