Let us say "no more CFS."
I have always had Severe ME, have never known a moment since I became ill and collapsed that has been without severe constant pain, paralysis, light and noise sensitivity, pins and needles, numbness, muscle dysfunction , damaged motor control, gut issues and a host of complex sensitivities and other symptoms. I quickly developed shaking spasms and my cognitive function deteriorated massively over almost 2 decades now, so that I can no longer do what I call in/ out transactions. Anything requiring information to come in , whether reading or listening, be understood, then reflected upon or thought about, then acted on in some physical way in some out going action such as writing, speaking , sorting out, dealing with externally, is quite simply and shockingly beyond my capability. I cannot tolerate or comprehend noise or information, I cannot bear visual stimulation requiring focus or cognition. What is probably most shocking though is that even though