Showing posts from January, 2013

The Five Myths

If you seek to campaign for a Public Inquiry into ME you should be very aware of the five myths that underpin official UK ME policy . I have written a report which is available to download from Stonebird :

Despair then Hope

The award of a Knighthood to a chief architect of CFS is one of those moments when you wonder what your life's work has been about. Have all these years of suffering and pain, has the struggle to achieve recognition for ME been in vain ? Is Stonebird , bless it, worth the effort ? Despair  is the unmentionable, the heinous sin. We don't go we ?? Don't we ? These days, since the the New Year Honours announcement I am drifting. On my computer I have a music programme; I  have become addicted to programming loud and intricate drum patterns - reaching  something wild inside, angry - and weeping . Some things are not just wrong, they are evil. The unimaginable suffering that people with ME have to endure , under the skilfully engineered CFS deception is an incomparable evil, that no one wants to know about. The ME population is ignored, ingeniously side-lined  - and now this greatest of insults, this stab in the guts, this shattering of illusions. Hope