How to Complain ???
"You get all these statements of intent to help, have these meetings, fill in dozens of multi-page forms, and then nothing happens. Except more talk, more forms and endless waiting." (Bernard, a carer, in "The Selfish Pig's Guide to Caring, Hugh Marriott, Time Warner, 2003, p. 119.) ....my heart sinks. Some initial research reveals that the old NHS Complaints procedure was badly in need of reform - and , thank the Lord, it has been. The problem, when contemplating going down the Formal Complaints road, is that ME is completely unlike any other disease in the way it has been misrepresented and manipulated by the medical insurance industry; the issues are complex and require sophisticated understanding. Added to that I have to take into account my wife's ability to deal with any complaints procedure - for it WILL make her health worse. Is it worth the cost ? In my mind, the only way to advance the ME cause and ultimately to get some tests and treatment , i...