Stonebird

  THE CARE NEEDS OF PEOPLE WITH SEVERE ME I ‘d like to share again this Guide that were proud to produce in conjunction with the 25% Group. How you approach a person who has a diagnosis of Severe ME is so crucial to get right. Massive focus, attention, understanding and empathy is required. At this level of illness, we have always stressed that the Moment Approach is the best way to try and meet need. . Every moment is a difficult moment but hopefully some moments might be easier than others. https://stonebird.co.uk/CN.pdf.

  August 8th : Severe ME Understanding and Remembrance Day WE REMEMBER THEM WITH kindness for it is important to honour the dead We remember them with tenderness for we cared beyond imagining We remember them with trepidation for we have to face our losses We remember them with boldness for it takes courage remembering the pain We remember them with sadness that they are no longer here with us We remember them with frustration that they were not helped We remember them with anger that they are gone For we remember All the hurt All the denial All the extremity of pain All the neglect All the harm All the harrowing moments All the suffering All the grief And we weep with gratitude For their precious lives For their tremendous personal strength For their utmost conviction For their forthrightness in speaking out For their passion in life For their compassion to others In a hostile, empty world. We remember and give thanks For who they were And who they will always be In our hearts. T...