If Only They Could See
If only they could see What our life is like Moment by moment The struggle The torment The not knowing what to do The not knowing how to get through The fear The uncertainty The severity of illness The torture of everything normal Causing hurt Physical harm Tears The blankness of cognitive dysfunction The sheer emptiness of mind The horrendous never ending ongoing continuum of paralysis and near paralysis and paralysis again Of numbness Of muscle collapse Of intense overheating and sweating Yet all the time with frozen feet and hands and nose The impact of noise and vibration Not just inconvenient Not just irritating Not just painful Not just tormenting Not just paralysing Not just numbing body and mind Not just thought stopping Not just completely unutterably incapacitating But literally fragmenting Deconstructing torture That rolls over and over again from moment to moment Never knowing when I will drop Fa