Into battle !


There's web-designers who cut & paste and there's those who hand-code everything. I take great pride in the latter; in a  way there is something almost medieval about HTML ; it  gives me great pleasure, I don't know why.


It is with the quiet glow of the craftsman at work,   that I upload a correctly-coded, working  page to Stonebird.


Not so last night. We have a 17 year old book in which every New Year's Eve, we write down our reflections on the past year; we began it when we first got married. My contribution last night roared with fighting talk; for I was wild, having just coded and  posted Kevin Short's lengthy Zombie Science and the Non-Random UK 'CFS/ME' PACE Trial. It's on the right hand side of www.stonebird.co.uk,  under"Essential Reading".


I mean : take the way that these lies are portrayed as a fact :


GET manual Page 23 -


"The more severely disabled group of CFS/ME patients were excluded from previous studies as the studies involved an exercise test that may have been too challenging.


However due to greater levels of inactivity in the more severely disabled group, the deconditioning model should apply equally if not more to these patients."




GET manual Page 50 -


"A central concept of GET is to MAINTAIN exercise as much as possible during a CFS/ME
setback."




CBT Therapists Manual Page 50 -


"Current situation (housing, living with, work, benefits, interests)


This section will draw together a lot of what you may already know. It may help you determine areas that will need to be addressed in your sessions. For example, it may draw your attention to problem areas such as inadequate housing, financial difficulties due to not working that may be factors that are contributing to the maintenance of their CFS/ME. Although you will have asked about employment and benefits, it would be useful to find out, if they are not working, whether they want to return to their previous job.


There is some evidence to suggest that being on benefits and/or income protection (IP) are poor prognostic factors as they are contingent upon the patient remaining unwell. Knowing about their current interests/hobbies may be helpful when you come to discuss targets for treatment."


.. that is just a tiny part of Kev's extraordinary,  must-read document. There's much, much more.


Contemplate, will you, for one second,  on the havoc that will be unleashed, on the harm that will be done, on the deaths that will happen, if NICE takes these idiotic ramblings seriously.


I don't know about you but I have arrived at Jan 1st 2011, like a Spartan warrior. I am just not going to put up with this cruel, life-destroying deceit a moment longer.


I will be writing a lot of code this  new year, doing everything in my power to expose the PACE trial for the fraud that it is. 

Comments

Post a Comment

Popular posts from this blog

When I am 64 and other false positives : The PACE Trial.

Image
Greg Crowhurst 6 th February 2013 “Much of what we think we know based on conventional statistical studies published in the academic literature stands a good chance of just not being  so “  Roger Pielke Jr http://rogerpielkejr.blogspot.co.uk/2012/03/false-positive-science.html Imagine  I am a psychiatrist and for £5 million, say ,  I want to prove that CBT and GET are a safe and useful treatment  for ME. The good news is “ how unacceptably easy it is to accumulate (and report) statistically significant evidence for a false hypothesis ,  according to Nelson and  Simonsohn (2011).  Their frightening  paper “ False-Positive Psychology, ” shows  how  “ undisclosed flexibility in data collection and analysis allows presenting anything as significant ,” .  In fact Nelson and Simonshon statistically  “prove” that listening to “ When I am 64 ” by the Beatles can   make you a couple of years young...
Read more

Paralysis, a qualitative study of people with Severe Myalgic Encephalomyelitis

Image
Greg and Linda Crowhurst (August 8 th 2013). Synopsis Paralysis is a symptom that is rarely highlighted in the literature for ME, yet is found amongst the most severely ill ME population and even some of those not so severely affected. My wife has experienced it for almost 2 decades, without adequate exploration, alongside exposure to denial and dismissal, ignorance and neglect as well as harmful treatment. We wanted to find out if there was anyone else with a similar experience to my wife's or if she was a rare and very severe case. We wanted to highlight the seriousness of this symptom and ask why it is being ignored and down played not only by the medical profession, with its inappropriate focus on fatigue and the psychosocial response, but also by the main charities, none of whom, flag it up as a main symptom. This qualitative research study indicates that there are significant others experiencing apparently similar paralysis and that my wife is not un...
Read more

DO NO HARM, DO NO BETRAYAL

Image
By Diane  I'm not sure where to start but this is my story so far.  My name is Diane and I'm a carer for my adult daughter, Lili, who is completely bedbound with very severe myalgic enceplalomyelitis.  For Lili, M.E. didn't come slowly.   It very rudely crashed into her life and very quickly stole her health, taking bigger and bigger chunks of it as she deteriorated.  It all began when she experienced a gastric-flu virus of a sort she had never experienced before because this time she never regained her health.  A couple days later, she woke up with agonising head pain 'like her brain was on fire', with severe neck pain – she also couldn't move her neck, and her whole body was paralysed.  She's not sure how long she stayed like this as she was in and out of consciousness but she truly felt that she was going to die because her body was undergoing an extreme crisis.  To cut a long story short, it took a year to get a diagnosis durin...
Read more