Think about this for a moment- how difficult do you think it might be to maintain any kind of hope, if you were seriously physically ill, with multi- system dysfunction, for decades on end, yet you had no way of finding out what is going so fundamentally wrong, physiologically, in your body ? How would it be if you were not taken seriously by main-stream medicine or even if you were, the answers were still not forthcoming? What if your horrendous physical illness was consistently misinterpreted as just unexplained fatigue without any underlying pathology? What if you were harmed, sometimes for years or forever, by any and every intervention tried, because the physiological insight pertinent to your illness,is missing, so it cannot be taken into account? What if you were left to “just get on with it”, in the most intense, disabling, horrendous pain and agony, becoming more and more isolated and invisible? What if it was safer for you to not engage with people than to ...
Greg, you have such a kind and generous spirit. You do so much for Linda, she is trapped in a neverending struggle. I hope she can learn to relax her body somehow as this will allow oxygen to flow through and ease the build up of acid.
ReplyDeleteI hope you yourself get moments of peace and that someone is there to care for you too. You are both so strong, I wish you would allow yourselves to not fight for your cause day in, day out, and just give yourselves some time off as I'm sure it would benefit both of your health and wellbeing.
Bless you ! Thank you so much. Yes, what you say is true; our greatest longing is to not have to keep struggling like this but the injustice, the suffering is so immense. Sadly there is no escape, it has invaded every moment of our life together,our effort, most days, is spent on coping and survival.More than two decades have passed; the depths of agony, the wilderness of Very Severe ME, that Linda knows, defies description in its horror and complexity. I am determined to fight back with everything I have got.xx
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