Think about this for a moment- how difficult do you think it might be to maintain any kind of hope, if you were seriously physically ill, with multi- system dysfunction, for decades on end, yet you had no way of finding out what is going so fundamentally wrong, physiologically, in your body ? How would it be if you were not taken seriously by main-stream medicine or even if you were, the answers were still not forthcoming? What if your horrendous physical illness was consistently misinterpreted as just unexplained fatigue without any underlying pathology? What if you were harmed, sometimes for years or forever, by any and every intervention tried, because the physiological insight pertinent to your illness,is missing, so it cannot be taken into account? What if you were left to “just get on with it”, in the most intense, disabling, horrendous pain and agony, becoming more and more isolated and invisible? What if it was safer for you to not engage with people than to ...
To Tom,
ReplyDeleteWhere ever you are now….
I could write that you impressed with your relentless will to fight and the bravado with which you were talking “truth to power”, but to me you were foremost a soul friend like no other. You were smart, wise, strong, funny and full of life. Above all, I could talk to you about anything. It was not always easy and we shared some hard times. But by god we also shared some good times, fantastic memories, the love for music and above all a GOOD DREAM.
Words cannot describe the deep sorrow I feel that you have left without a warning.
So Tom, like always when I miss you, I send a song into cyberspace and hope you will hear it.
LOVE
DE ONE
P.S. I must believe we will meet again.
http://www.youtube.com/watch?v=YiOYsnET6Iw