Greg and Linda Crowhurst (August 8 th 2013). Synopsis Paralysis is a symptom that is rarely highlighted in the literature for ME, yet is found amongst the most severely ill ME population and even some of those not so severely affected. My wife has experienced it for almost 2 decades, without adequate exploration, alongside exposure to denial and dismissal, ignorance and neglect as well as harmful treatment. We wanted to find out if there was anyone else with a similar experience to my wife's or if she was a rare and very severe case. We wanted to highlight the seriousness of this symptom and ask why it is being ignored and down played not only by the medical profession, with its inappropriate focus on fatigue and the psychosocial response, but also by the main charities, none of whom, flag it up as a main symptom. This qualitative research study indicates that there are significant others experiencing apparently similar paralysis and that my wife is not un...
To Tom,
ReplyDeleteWhere ever you are now….
I could write that you impressed with your relentless will to fight and the bravado with which you were talking “truth to power”, but to me you were foremost a soul friend like no other. You were smart, wise, strong, funny and full of life. Above all, I could talk to you about anything. It was not always easy and we shared some hard times. But by god we also shared some good times, fantastic memories, the love for music and above all a GOOD DREAM.
Words cannot describe the deep sorrow I feel that you have left without a warning.
So Tom, like always when I miss you, I send a song into cyberspace and hope you will hear it.
LOVE
DE ONE
P.S. I must believe we will meet again.
http://www.youtube.com/watch?v=YiOYsnET6Iw