SEVERE ME UNDERSTANDING AND REMEMBRANCE DAY Aug 8th We were asked by ME Group Australia to write an article on finding Hope in this place of endless, severe suffering: You Are Precious And Your Presence Matters, a Reflection on Hope. Greg and Linda Crowhurst When you are diagnosed with Severe/Very Severe ME, hope is an ephemeral, delicate thing. If you hope to be immediately better, or return to your previous life, those hopes will, most likely, be dashed, if the diagnosis is correct. When I was asked to write this article for ME Group Australia, I asked Linda, my wife, what hope means to her. She commented : “Hope for me cannot be about anything specific, unless that specific thing is actually achievable, or potentially achievable or possibly achievable at some point in time, even if it feels unlikely . For me hope comes in small things, not big things. Hope of a better moment, hope to not be irritated, hope to not be distressed, hope not to be tormented in every single mome...
To Tom,
ReplyDeleteWhere ever you are now….
I could write that you impressed with your relentless will to fight and the bravado with which you were talking “truth to power”, but to me you were foremost a soul friend like no other. You were smart, wise, strong, funny and full of life. Above all, I could talk to you about anything. It was not always easy and we shared some hard times. But by god we also shared some good times, fantastic memories, the love for music and above all a GOOD DREAM.
Words cannot describe the deep sorrow I feel that you have left without a warning.
So Tom, like always when I miss you, I send a song into cyberspace and hope you will hear it.
LOVE
DE ONE
P.S. I must believe we will meet again.
http://www.youtube.com/watch?v=YiOYsnET6Iw