How can any civilised society accept this ?
Greg Crowhurst
In a brilliant blog
post, Utting Wolff reports upon how "deafening" the “silence
surrounding the IOM report in the UK media" is .
Whatever your views on the IOM Report : good news perhaps for CFS, maybe not
so good for M.E – the issue as
Utting Wolf points out, is how little coverage this landmark Report got - as opposed to the global, front-page headline coverage just about everything the
psychiatric lobby puts out, receives.
As
Utting Wolf suggests, imagine how different it might have been if the
IOM had recycled the “intellectually embarassing” psychiatric
line that ME is a "non disease",
a somatoform disorder, maintained by abnormal or unhelpful illness
beliefs, that the patient can 'recover' by adjusting their
dysfunctional beliefs and behaviour, proposed to be the maintaining
factors in ME for example unhelpful, anxiety-provoking thoughts and
kinesiophobia ('fear of movement'). Maes & Twisk (2010)
Instead the IOM asserts
the opposite : “ ME/CFS is a serious, chronic, complex,
multisystem disease that often can profoundly limit the health and
activities of affected patient”; it
is not “ neurasthenia”.
One can only presume the Science Media Centre is not
interested .
Irrationally, despite
having been shown to be wrong about the Camelford disaster (Wood
2012), Gulf War syndrome, mobile phones, IBS, fibromyalgia - and now
CFS, the psychiatric lobby, greatly aided by the Science Media
Centre, exercises enormous influence over Government policy and the
Media .(Hooper, Marshall and Williams 2007)
According to Martin
Walker (2011) the Science Media
Centre plus another lobby outfit, Sense About Science,
were set up in the early 2000s by former architects of Labour's
1997 victory, to defend the interests of pharmaceutical and
corporate science : George Monbiot (2003) comments upon how “One
of the strangest aspects of modern politics is the dominance of
former left-wingers who have swung to the right.” (I have
reported elsewhere on how enthusiastically Labour and the Coalition
have embraced the psychiatric biopsychosocial model of illness. Crowhurst 2015)
These organisations
which are dominated by topics closer to corporate rather than public
interest. are reported upon uncritically by journalists Tatalovic
(2014),
The Science Media
Centre's (SMC) claim: to provide neutral scientific views to promote
better representation of science in the media, and to be independent
of he corporate world and the government is being increasingly
questioned. Researchers suggest that the journalists who uncritically
report on SMC briefings and quotes sent by the centre are being taken
for a ride by a lobby organisation . Tatalovic (2014)
Meantime the UK Science
Media Centre (SMC) has spawned a number of sister SMCs in other
countries, including Australia, New Zealand, Canada, and Japan. A US
version the Science Media Center of the United States is under
development.(Powerbase).
How can any civilised
society accept this ?
The psychiatric myth,
perpetuated by the Science Media Centre and others has led to decades
of denial, abuse, misrepresentation, misinterpretation, a total lack
of medical investigation, testing and hope – especially for the
most severely affected. However as Margaret Williams (2015) points out- and
as the IOM Report possibly suggests : 'The day is surely approaching when
it will be conclusively shown that the psychosocial lobby have spent
their ME/CFS careers in a “null field”.'
Crowhurst G (2015)
Labour, the Coalition and the Biopsychosocial Model
http://carersfight.blogspot.co.uk/2015/01/labour-coalition-and-biopsychosocial.html
Hooper M, Marshall E,
Williams M (2007) CORPORATE COLLUSION?
http://www.meactionuk.org.uk/Corporate_Collusion_2.htm
Maes M Twisk F NM
(2010)Chronic fatigue syndrome: Harvey and Wessely's
(bio)psychosocial model versus a bio(psychosocial) model based on
inflammatory and oxidative and nitrosative stress pathways BMC Med.
2010; 8: 35.http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2901228/
Monbiot G (2003)
Invasion of the Entryists
http://www.monbiot.com/2003/12/09/invasion-of-the-entryists/
Powerbase Science Media
Centre http://powerbase.info/index.php/Science_Media_Centre
Tatalovic M (2014) UK’s
Science Media Centre lambasted for pushing corporate science
http://www.scidev.net/global/journalism/feature/uk-s-science-media-centre-lambasted-for-pushing-corporate-science.html
Utting Wolff (2015)
Chronically fatigued? The UK media and the recently released IOM
report http://uttingwolffspouts.com/
Walker M (2011) Dirty
Medicine: The Handbook Slingshot Publications
http://www.amazon.co.uk/Dirty-Medicine-Handbook-Martin-Walker/dp/0956409318
Williams M (2015) Tackling fears about exercise is important for ME treatment, analysis indicates BMJ 2015;350:h227 http://www.bmj.com/content/350/bmj.h227/rr-21
Wood J (2012) The
Camelford poisonings – not the 'sorry' that victims were looking
for http://www.theguardian.com/commentisfree/2012/mar/14/camelford-poisonings-cornwall-inquest-water
A great post Greg. Many of those reading our article in Utting-Wolff Spouts missed that it concerned the lack of media coverage of any material suggesting ME is a real and physical disease, and was not intended as a critique of the IOM report. Your points about the SMC are very well made, the damage they've done to the ME patient community by pushing the psychogenic model so strongly is considerable.
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