The harm done through ignorance.

People diagnosed with Severe ME have to be so careful. It is very hard to find someone who comprehends the risks and dangers of engaging with them, especially because the illness is so hidden, invisible, misunderstood not adequately investigated. 

Once you reach a certain level of the illness there comes a point beyond which people cannot risk investigations. The danger to your health and life is so immense.

 People need help badly, but it needs to be given in the right way. 

The harm done through ignorance is indescribable.


  1. It has been hard for me to explain that an "assessment for services" can make me ill and i am not able to explain myself anyway. I have trouble using phone, answering questions but everyone expects me to speak for myself. I have been ghaving home care for 14 years so there is already information on file. Its just managers getting paid to fill in forms but no-one to take the time to learn about the condition and act accordingly,


Post a Comment

Popular posts from this blog

The psychiatric abuse of Children with ME

Linda's response to the BMJ

Risk Assessment for interactions with people with Severe and Very Severe ME/CFS -an essential and important inclusion in the new NICE Guidelines