THE PARADOX OF CARING FOR PEOPLE WITH SEVERE ME : why a MOMENT APPROACH is necessary.
This new Stonebird guide explores the paradoxes that may only become apparent when you try to engage with and care for people with Severe /Very Severe ME.
At the worst of the most severe end of Severe/ Very Severe ME, where nothing is possible and everything is a torment or a torture, accessing much needed care, with so many broken communication pathways, is a massive challenge.
It is not necessarily obvious as to how and when to interact safely with the person and in the best way.
This Guide advocates a person-centred, moment-centred, moment aware approach to care.