The Barriers between the person with Severe ME and the world

This is how Linda describes the agony she is in, right now, No words can express the suffering she is going through.

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Linda's response to the BMJ

Feature : Medical Research  :   Dangers of research into chronic fatigue syndrome Nigel Hawkes BMJ   2011 ; 342 : doi: 10.1136/bmj.d3780  (Published  22 June 2011 ) [ Extract ]   [ Full text ]   [ PDF ] Who are the real victims ? Linda Crowhurst ,  Very Severe ME patient Norfolk Because a few people are behaving inappropriately, it does not mean that the real physical needs of people with neurological ME are not a genuine issue. It does not mean there are not valid issues about PACE that are right to be raised. It does not make the findings of the PACE Trial any more valid for people with ME - and it certainly does not negate the ongoing biomedical neglect of patients, which is directly a result of the confusion that the psychiatric lobby has created , regarding the proper treatment of ME, a WHO-classified , serious neurological disease. Nor does it make right the implication that ME is a mental health condition requiring therapy as treatment. Peter White , the lead investigator o
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We Remember: A poem for 8th August, Severe ME Understanding and Remembrance Day

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We remember them with sadness that they are no longer here with us  We remember them with frustration that they were not helped We remember them with anger that they are gone For we remember  All the hurt All the denial All the extremity of pain All the neglect All the harm All the harrowing moments All the suffering All the grief And we weep with gratitude For their precious lives For their tremendous personal strength For their utmost conviction For their forthrightness in speaking out For their passion in life For their compassion to others In a hostile, empty world. We remember and give thanks For who they were And who they will always be In our hearts.
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